Amyotrophic Lateral Sclerosis (ALS, also known as Lou Gehrig’s disease) makes motor neurons atrophy, causing patients to lose control of movement, speech, and eventually, breathing. Because degeneration can happen very quickly, ALS treatment can drain a family’s finances in a matter of months.
Last month Congress passed a bill that allows ALS patients to have access to support earlier in their diagnosis.
- Eliminates the five-month waiting period for ALS patients to begin receiving benefits under the Social Security Disability Insurance (SSDI) program.
- Under SSDI, patients are immediately covered by Medicare.
- The average monthly SSDI benefit is set to resemble last year’s benefit in June of $1,259.
- Other incurable diseases that incur disability, such as metastatic breast cancer, are advocating for the same provisions.
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